Mpedi Family Launches Scholarship for Neurodiversity Studies at UJ
In a groundbreaking initiative, the University of Johannesburg (UJ) Vice-Chancellor and Principal, Professor Letlhokwa Mpedi and his family have launched the Mpedi Neurodiversity Studies Scholarship. This initiative unveiled on 4 March 2024, signifies a commitment to fostering inclusive research and addressing the unique challenges faced by individuals with neurodiverse conditions.
In pursuit of increasing the number of professionals in this field, UJ’s Vice-Chancellor and Principal, Professor Mpedi and his family have established the Scholarship on Neurodiversity Studies to assist students pursuing Master’s studies (by research) with a focus on neurodevelopmental learning needs of children and youth. The four students identified as pioneers in this initiative presented their planned research during the launch.
The Centre for Neurodiversity@UJ
Under the leadership of Professor Maximus Monaheng Sefotho, coordinator of the Centre for Neurodiversity at UJ, the scholarship within this research centre seeks to support research with a focus on the neurodevelopmental learning needs of children and youth, especially the health and well-being of children with Down Syndrome. This initiative by the Mpedi Family reflects their dedication to reshaping societal perspectives on neurodiversity and emphasises the importance of responding to the educational needs of children with neurodiverse learning needs appropriately through understanding and inclusivity.
The scholarship represents more than a financial aid programme. It aims to support the Centre for Neurodiversity to address global challenges in the field of neurodiversity and to facilitate meaningful research that contributes to a more inclusive and understanding society.
Prof. Mpedi’s personal journey and advocacy for Neurodiversity rights
As a parent of a neurodivergent child, Prof Mpedi has exceptional insight into how his son Daniel’s unique cognitive landscape can contribute to a richer and more diverse tapestry of human intelligence which not only challenges conventional notions but also fosters a broader appreciation for the multifaceted nature of intellectual prowess.
“It is through education that we will empower as many people as possible. The idea of embracing neurodiversity opens up the opportunity for us to create a better-equipped society to support and nurture neurodivergent individuals.”
Mpedi argued that legal systems needed to better safeguard the rights of neurodivergent individuals, ensuring inclusive policies that respect and protect their inherent dignity while fostering an environment where their unique perspectives and capabilities are acknowledged and celebrated in the broader context of human rights.
Mpedi also reflected on his family’s journey with Down Syndrome saying that ‘special kids go to special parents’. He noted how fortunate they were as a family to have the means to take care of a neurodivergent child whereas other people were not able to as they did not have access to knowledge or facilities like the Centre at UJ. He encouraged people to see neurodivergent differences as variations of the human experience rather than defects.
According to the Neurodiversity Foundation, in South Africa 10% of all children experience neurodivergence for differing degrees.
“The biggest challenge is that most families do not have access to early diagnosis or treatment which is limiting to neurodivergent individuals.”
Scholarship awardees and their research topics
Three of the scholarship awardees presented their topics of study at the symposium.
Nthabiseng Molebatsi’s 9-year-old niece living with Down Syndrome inspired her studies in neurodiversity.
“My studies are looking at the socio-economic backgrounds in mining communities and possibly hypothesising the link between parental factors that have a manifestation in Down Syndrome.”
Ntokozo Zwane’s research study is based on parents’ experience with providing learning support to children with Down Syndrome.
Mohamed Mosala’s research is based on strategies for the successful transition for learners with Down Syndrome from home to school.
A more inclusive research landscape
During the launch, Prof. Engela Magdelena Honey from the University of Pretoria, an experienced paediatric professional with 25 years in the field, delivered an insightful talk on Down Syndrome. Prof. Honey covered various aspects, elucidating the genetic aspects and overall development of individuals with Down Syndrome.
She emphasised that while the experience may differ, it remains a wonderful journey. Prof. Honey reassured that treating a child with Down Syndrome similarly to any other, with a lot of love and support, is key, stating, “As long as the heart is normal, you can treat this child like any other with a lot of life, and we will be there to help.”
The launch of the Mpedi Neurodiversity Studies Scholarship is not just a singular event; it marks the beginning of a vision for an inclusive research landscape to be cultivated within the Centre for Neurodiversity@UJ.
UJ looks forward to a future where the Mpedi Neurodiversity Studies Scholarship becomes a beacon for inclusive research, breaking down barriers and fostering a global community dedicated to understanding and embracing neurodiversity.
The Neurodiversity@UJ Centre is headed by the University’s Department of Educational Psychology within the Faculty of Education.